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Live Rett University Webinars

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Feb
08

We Still Have Work to Do …

by Susan Norwell, co-founder Rett University Maybe you’re like me and feel deep emotions when you hear a family’s story of their child’s initial diagnosis with Rett Syndrome and their journey so far. I am excited that families are getting the word out about Rett Syndrome, boy or girl, yet, saddened that another family has […]

By Roger | Blog
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Oct
03

I Am A Parent

by Abigail Davison-Hoult, mum, wife and Rett University Coach I am a parent. A parent to someone with Rett Syndrome. A child with Rett Syndrome who indisputably is in great general health, so far dodging many of the major symptoms and challenging her diagnosis every day, but a child with Rett Syndrome nonetheless. She is […]

By Roger | Blog
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Aug
22

Time for Back to School – Make the difference for your kiddos this year!

I am so excited to be reaching out to you! The support you are providing your kiddos is remarkable. Over the last few months, I’ve been excited and encouraged to hear about all that is going on with our students with Rett Syndrome and others with complex needs. I’m receiving hundreds of emails, texts and […]

By admin | Academic . Blog . Uncategorized
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Jun
28

Rett U Live! with TobiiDynavox – West Coast in July!

You asked and we are ready to deliver! Rett U Live! is coming to the West Coast for four all-day sessions with TobiiDynavox. DATES & LOCATIONS Wednesday, July 20, San Francisco, CA [download flyer] San Francisco Airport Marriott Waterfront, 1800 Old Bayshore Highway, Burlingame, CA 94010 Friday, July 22, Seattle, WA [download flyer] Seattle Airport Marriott, […]

By admin | Blog . Uncategorized
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Feb
02

Fighting back from helplessness

Learning that you are helpless…then unlearning it again! by Jennie Simmons I am the mother of a 7-year-old daughter with Rett Syndrome. Since she was diagnosed, nearly four years ago, I have tried my best to use my training as a psychologist, researcher and complementary therapist to help manage the difficulties of life with Rett where […]

By admin | Blog . Uncategorized
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Dec
22

Rett U scholarship makes impact in Mexico

Our number one priority is being able to make a positive impact on the lives of those suffering from Rett Syndrome. Recently we received this letter from a therapist in Mexico who was the recipient of a Rett U scholarship. We want to share her words with you. [original letter in Spanish follows below]     […]

By admin | Blog . Uncategorized
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Jun
04

WHAT RETT SYNDROME MEANS TO ME

by Candice Samples-Morris My daughter Evelyn didn’t develop like a typical child, she did not develop like a typical Rett Girl either. She never sat independently, she took a long time to nurse, she never …

By admin | Blog
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Jun
04

FROM A TEACHER’S EYES

I am mom to two amazing little girls. My oldest has Rett Syndrome, a severe neurological disorder that mainly affects girls. It affects every part of her body: her ability to walk, speak, or even use her hands.

By admin | Blog
DETAIL

FACEBOOK POSTS

9 hours ago

Rett University

This just in, the research portion of our Power of Your Gift campaign is here. Read the full newsletter at this link: bit.ly/2RWJBMBThe Power of Your Research! We continue our Power of Your Gift theme at the end of the year with our message here that is focused on research.

Our partners at Rett Syndrome Research Trust (RSRT) continue to lead the worldwide community in pursuit of advanced, cure-focused research projects for Rett Syndrome and other MECP2-related disorders, and we are in the battle together! We are grateful that 2018 has been a breakthrough year for Rett research.

The Novartis-AveXis merger has brought the prospect of human gene therapy trials on the near-term horizon, as well as advances in MECP2 reactivation, RNA modification and protein replacement research initiatives.

There is so much promise, and GP2C support of these RSRT programs is critical. To date, GP2C has funded over $1.55M of this exciting and necessary research through the Rett Syndrome Research Trust!

Happy Holidays,
The GP2C Team

- read the full newsletter here: mailchi.mp/269ec8de804c/ahuzkbpew7-3808169

Multiply Your Impact This Weekend! Our generous GP2C benefactors are excited by your incredible response so they will be matching your donations again! Matching will be applied to the first $5,000 of donations completed by midnight Sunday, December 16th, so please consider making a donation to fund Rett research before the end of this weekend: secure.qgiv.com/for/2poyg Thank you!

#poyg #powerofyourgift #powerofyourresearch #rettsyndrome #rettsyndromeresearch #riseaboverett
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14 hours ago

Rett University

Wow, these Annie Smith designs are amazing! Grab these for the holidays while you can: shop.girlpower2cure.org/ Let's hear it for the #HangryHousewife!GOOD FOOD GOOD MOOD! We are happy to announce our collaboration with the one and only Hangry Housewife! These Annie Smith inspired embroidered aprons and cutting boards are perfect gifts for the culinary genius in your home. shop.girlpower2cure.org/collections/new-items/products/good-food-mood-cutting-board?variant=15859... Bonus: net proceeds from your purchase supports Girl Power 2 Cure's mission across the globe 🧡

Cutting board: Spruce up your kitchen while impressing your guests with this multi-use bamboo cutting board. The laser etched design adds some character for decor & presentation, while the other side operates as a fully functional kitchen utensil.

• Made From High Quality, Organically Grown Bamboo
• Dual Purpose Sides: One for Food Preparation & One for Display
• Free of Pesticides, Fertilizer & Chemicals
• No Artificial Coloring
• Food Safety Tested and Approved by US-FDA
• Food-Safe Lacquer Coated
• 8"x5.75" Handle to Handle

Apron: you don't have to worry about keeping your clothes clean when cooking! The neck loop and long ties, two front pockets, and intricate embroidery in front all come together in an eye-catching and comfy accessory that'll make you long for more time in the kitchen.

• 70% polyester/30% cotton
• Adjustable neck loop and long ties
• Two front pockets
• Fabric weight: 9.0 oz

#forkrett #goodfoodgoodmood #anniesmith #hangryhousewife #girlpower2cure #rettgirl #rettuniversity #rettsyndrome #riseaboverett #rettsyndromeawareness
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2 days ago

Rett University

Tonite! Judy Lariviere explores the critical topic of fun & leisure for our kiddos and our families. There's still time to sign up: rettu.digitalchalk.com/dc/learn/live-webinar-play-leisure-activities-preschool-to-adults

5:30 – 6:30 PM PACIFIC⠀
7:30 - 8:30 PM CENTRAL⠀
8:30 – 9:30 PM EASTERN⠀

As a parent, do you often wish that you had more ways for your son or daughter to engage in play or leisure activities on their own or with you, siblings, friends and/or relatives? Would you love for your son or daughter to have more independent control over toys, games, or other everyday activities rather than always relying on hand-over-hand support? If you answered yes to one or both of these questions, then this is the webinar for you!⠀

In this live webinar, you will be inspired as you learn about new tools and strategies you can use to give your son or daughter increased independence in activities including, but not limited to, reading/listening to books, arts and crafts, taking photos, mealtime preparations, games, etc. Strategies for supporting quick and easy set-up will also be outlined so you can have other family members or caregivers set things up for your son or daughter. A few of the activities presented involve the use of Tobii Dynavox’s Communicator 5 through touch screen or eye gaze technology. Others include web-based games, which can be accessed through a single switch or eye gaze technology. Although you will walk away from this webinar with many ideas, you will be sure to find one that will be the easiest or most fun to introduce to your son or daughter. A resource list with links to toys and tools will be included in the course.

This live webinar will have a format of a 45-minute presentation followed by questions from participants for the rest of the hour or so.

ACCESS TO THE WEBINAR WILL BE MADE AVAILABLE 15 MINUTES BEFORE START TIME AND CAN BE FOUND IN YOUR CURRENT COURSES FOLDER OF YOUR RETT U ACCOUNT. #rettsyndrome
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3 days ago

Rett University

Just a little reminder about Rett Mom and Warrior from California, Malin Delling’s Rett University blog via the wonderful Tobii Dynavox:"A little while ago, the greatest thing happened. We brought the wagon with Lily and her Tobii to our dog park and she made a new friend all by herself - by talking to him." Read this inspiring story by Rett Mom Malin Delling
👉 fal.cn/rKrT

Thanks, Rett University, for sharing this story with us!
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3 days ago

Rett University

Tonite! Rett University Coach Kourtney Barnum will be participating in Rettsyndrome.orgs webinar on siblings, tune in! ⠀

Reposting @rettsyndromeorg:⠀
...⠀
"Siblings play a vital role in the lives of children with Rett syndrome. Tonight's RettEd webinar at 5PM (special time) is about the unique challenges and opportunities faced by siblings to those with Rett. Join us! Register today: buff.ly/2Bks5Ll. ⠀
#siblings #specialneeds #challenges #opportunities #specialbond #gift #webinar #retteducation #rettsyndrome #rettawareness #overpowerrett" Girl Power 2 Cure Rett Girl!
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