We Still Have Work to Do …
by Susan Norwell, co-founder Rett University Maybe you’re like me and feel deep emotions when you hear a family’s story of their child’s initial diagnosis with Rett Syndrome and their journey so far. I am excited that families are getting the word out about Rett Syndrome, boy or girl, yet, saddened that another family has […]
I Am A Parent
by Abigail Davison-Hoult, mum, wife and Rett University Coach I am a parent. A parent to someone with Rett Syndrome. A child with Rett Syndrome who indisputably is in great general health, so far dodging many of the major symptoms and challenging her diagnosis every day, but a child with Rett Syndrome nonetheless. She is […]
Time for Back to School – Make the difference for your kiddos this year!
I am so excited to be reaching out to you! The support you are providing your kiddos is remarkable. Over the last few months, I’ve been excited and encouraged to hear about all that is going on with our students with Rett Syndrome and others with complex needs. I’m receiving hundreds of emails, texts and […]
Rett U Live! with TobiiDynavox – West Coast in July!
You asked and we are ready to deliver! Rett U Live! is coming to the West Coast for four all-day sessions with TobiiDynavox. DATES & LOCATIONS Wednesday, July 20, San Francisco, CA [download flyer] San Francisco Airport Marriott Waterfront, 1800 Old Bayshore Highway, Burlingame, CA 94010 Friday, July 22, Seattle, WA [download flyer] Seattle Airport Marriott, […]
Fighting back from helplessness
Learning that you are helpless…then unlearning it again! by Jennie Simmons I am the mother of a 7-year-old daughter with Rett Syndrome. Since she was diagnosed, nearly four years ago, I have tried my best to use my training as a psychologist, researcher and complementary therapist to help manage the difficulties of life with Rett where […]
Rett U scholarship makes impact in Mexico
Our number one priority is being able to make a positive impact on the lives of those suffering from Rett Syndrome. Recently we received this letter from a therapist in Mexico who was the recipient of a Rett U scholarship. We want to share her words with you. [original letter in Spanish follows below] […]
WHAT RETT SYNDROME MEANS TO ME
by Candice Samples-Morris My daughter Evelyn didn’t develop like a typical child, she did not develop like a typical Rett Girl either. She never sat independently, she took a long time to nurse, she never …
FROM A TEACHER’S EYES
I am mom to two amazing little girls. My oldest has Rett Syndrome, a severe neurological disorder that mainly affects girls. It affects every part of her body: her ability to walk, speak, or even use her hands.
