Blog




Live Rett University Webinars

Jun
22

Rett U Book Club

A great book! Enjoy with your child or student as read and modeled by Susan Norwell! Click below for Communicator 5 pagesets and a book image to add to the bookshelf! Communicator 5 Pageset Book Image Happy Reading!

By Roger | Academic . Literacy
DETAIL
Jun
15

Rett U Book Club

Enjoy this book with your child or student as read and modeled by Susan Norwell! Click below for Communicator 5 pagesets and a book image to add to the bookshelf! Communicator 5 Pageset Book Image Happy Reading!

By Roger | Literacy
DETAIL
Feb
08

We Still Have Work to Do …

by Susan Norwell, co-founder Rett University Maybe you’re like me and feel deep emotions when you hear a family’s story of their child’s initial diagnosis with Rett Syndrome and their journey so far. I am excited that families are getting the word out about Rett Syndrome, boy or girl, yet, saddened that another family has […]

By Roger | Blog
DETAIL
Oct
03

I Am A Parent

by Abigail Davison-Hoult, mum, wife and Rett University Coach I am a parent. A parent to someone with Rett Syndrome. A child with Rett Syndrome who indisputably is in great general health, so far dodging many of the major symptoms and challenging her diagnosis every day, but a child with Rett Syndrome nonetheless. She is […]

By Roger | Blog
DETAIL
Aug
22

Time for Back to School – Make the difference for your kiddos this year!

I am so excited to be reaching out to you! The support you are providing your kiddos is remarkable. Over the last few months, I’ve been excited and encouraged to hear about all that is going on with our students with Rett Syndrome and others with complex needs. I’m receiving hundreds of emails, texts and […]

By admin | Academic . Blog . Uncategorized
DETAIL
Jun
28

Rett U Live! with TobiiDynavox – West Coast in July!

You asked and we are ready to deliver! Rett U Live! is coming to the West Coast for four all-day sessions with TobiiDynavox. DATES & LOCATIONS Wednesday, July 20, San Francisco, CA [download flyer] San Francisco Airport Marriott Waterfront, 1800 Old Bayshore Highway, Burlingame, CA 94010 Friday, July 22, Seattle, WA [download flyer] Seattle Airport Marriott, […]

By admin | Blog . Uncategorized
DETAIL
Feb
02

Fighting back from helplessness

Learning that you are helpless…then unlearning it again! by Jennie Simmons I am the mother of a 7-year-old daughter with Rett Syndrome. Since she was diagnosed, nearly four years ago, I have tried my best to use my training as a psychologist, researcher and complementary therapist to help manage the difficulties of life with Rett where […]

By admin | Blog . Uncategorized
DETAIL
Dec
22

Rett U scholarship makes impact in Mexico

Our number one priority is being able to make a positive impact on the lives of those suffering from Rett Syndrome. Recently we received this letter from a therapist in Mexico who was the recipient of a Rett U scholarship. We want to share her words with you. [original letter in Spanish follows below]     […]

By admin | Blog . Uncategorized
DETAIL
Jun
04

WHAT RETT SYNDROME MEANS TO ME

by Candice Samples-Morris My daughter Evelyn didn’t develop like a typical child, she did not develop like a typical Rett Girl either. She never sat independently, she took a long time to nurse, she never …

By admin | Blog
DETAIL
Jun
04

FROM A TEACHER’S EYES

I am mom to two amazing little girls. My oldest has Rett Syndrome, a severe neurological disorder that mainly affects girls. It affects every part of her body: her ability to walk, speak, or even use her hands.

By admin | Blog
DETAIL

FACEBOOK POSTS

10 hours ago

Rett University

Just a little reminder about Rett Mom and Warrior from California, Malin Delling’s Rett University blog via the wonderful Tobii Dynavox:"A little while ago, the greatest thing happened. We brought the wagon with Lily and her Tobii to our dog park and she made a new friend all by herself - by talking to him." Read this inspiring story by Rett Mom Malin Delling
👉 fal.cn/rKrT

Thanks, Rett University, for sharing this story with us!
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1 day ago

Rett University

Tonite! Rett University Coach Kourtney Barnum will be participating in Rettsyndrome.orgs webinar on siblings, tune in! ⠀

Reposting @rettsyndromeorg:⠀
...⠀
"Siblings play a vital role in the lives of children with Rett syndrome. Tonight's RettEd webinar at 5PM (special time) is about the unique challenges and opportunities faced by siblings to those with Rett. Join us! Register today: buff.ly/2Bks5Ll. ⠀
#siblings #specialneeds #challenges #opportunities #specialbond #gift #webinar #retteducation #rettsyndrome #rettawareness #overpowerrett" Girl Power 2 Cure Rett Girl!
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2 days ago

Rett University

Check out this new webinar!!! Want some leisure ideas for what to do with your eye-gaze user?? This is the class for you!!

Girl Power 2 Cure
Breaking! We have a new Rett University live webinar on the books for next Thursday the 13th. Register here: rettu.digitalchalk.com/dc/learn/live-webinar-play-leisure-activities-preschool-to-adults

As a parent, do you often wish that you had more ways for your son or daughter to engage in play or leisure activities on their own or with you, siblings, friends and/or relatives? Would you love for your son or daughter to have more independent control over toys, games, or other everyday activities rather than always relying on hand-over-hand support? If you answered yes to one or both of these questions, then the new live Rett University webinar is for you!

Our instructor Judy Lariviere, M.Ed., OTR/L will guide us in a discussion about the ever important topic of play and leisure. Can't wait to see you!

Thursday, December 13th

5:30 – 6:30 PM PACIFIC

7:30 - 8:30 PM CENTRAL

8:30 – 9:30 PM EASTERN

In this live webinar, you will be inspired as you learn about new tools and strategies you can use to give your son or daughter increased independence in activities including, but not limited to, reading/listening to books, arts and crafts, taking photos, mealtime preparations, games, etc. Strategies for supporting quick and easy set-up will also be outlined so you can have other family members or caregivers set things up for your son or daughter. A few of the activities presented involve the use of Tobii Dynavox’s Communicator 5 through touch screen or eye gaze technology. Others include web-based games, which can be accessed through a single switch or eye gaze technology. Although you will walk away from this webinar with many ideas, you will be sure to find one that will be the easiest or most fun to introduce to your son or daughter. A resource list with links to toys and tools will be included in the course.

This live webinar will have a format of a 45-minute presentation followed by questions from participants for the rest of the hour or so.

ACCESS TO THE WEBINAR WILL BE MADE AVAILABLE 15 MINUTES BEFORE START TIME AND CAN BE FOUND IN YOUR CURRENT COURSES FOLDER OF YOUR RETT U ACCOUNT.

About our instructor:

Judy Lariviere, M.Ed., OTR/L has worked in the field of Assistive Technology, including Augmentative and Alternative Communication (AAC), for the past 27 years. She is the Communication Specialist at Katie’s Clinic for Rett Syndrome and Related Disorders at UCSF Benioff Children’s Hospital Oakland. Judy also has a part-time private practice through Assistive Tech 4 ALL, Inc. Over the past 18 years, Judy has worked with many girls and women with Rett Syndrome (RTT); identifying their best means of access to technology for communication and literacy learning, while also implementing tools and strategies to support their educational progress. She has designed various eye gaze page layouts specifically for individuals with RTT and has used these successfully with over 250 girls and women. In addition, Judy has also developed a video player and accessible music player for use with Tobii eye tracking devices.

Judy presents at conferences nationally and internationally and has published articles about access and eye gaze technology for individuals with RTT. Judy is a full-time Professor as an Assistive Technology Specialist in the Disability Resource Center at Skyline College in San Bruno, CA. Judy is passionate about “unlocking” the communication and learning potential in individuals with Rett Syndrome and related disorders. Currently, Judy and Pati King-DeBaun are developing an online interactive curriculum focused on jump starting conversation, language and literacy for students with Rett Syndrome which will be available soon.

#fun #leisure #rettuniversity #rettsyndrome #riseaboverett #girlpower2cure #rettgirl
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2 days ago

Rett University

Have you seen Rett Mom and Advocacy Team Member Jenny Starnes Tesler's video announcing our upcoming webinar? She nails it. Let's talk about fun & leisure this Thursday!

Register here: rettu.digitalchalk.com/dc/learn/live-webinar-play-leisure-activities-preschool-to-adults

5:30 – 6:30 PM PACIFIC

7:30 - 8:30 PM CENTRAL

8:30 – 9:30 PM EASTERN

As a parent, do you often wish that you had more ways for your son or daughter to engage in play or leisure activities on their own or with you, siblings, friends and/or relatives? Would you love for your son or daughter to have more independent control over toys, games, or other everyday activities rather than always relying on hand-over-hand support? If you answered yes to one or both of these questions, then this is the webinar for you!

Girl Power 2 Cure
Breaking! We have a new Rett University live webinar on the books for next Thursday the 13th. Register here: rettu.digitalchalk.com/dc/learn/live-webinar-play-leisure-activities-preschool-to-adults

As a parent, do you often wish that you had more ways for your son or daughter to engage in play or leisure activities on their own or with you, siblings, friends and/or relatives? Would you love for your son or daughter to have more independent control over toys, games, or other everyday activities rather than always relying on hand-over-hand support? If you answered yes to one or both of these questions, then the new live Rett University webinar is for you!

Our instructor Judy Lariviere, M.Ed., OTR/L will guide us in a discussion about the ever important topic of play and leisure. Can't wait to see you!

Thursday, December 13th

5:30 – 6:30 PM PACIFIC

7:30 - 8:30 PM CENTRAL

8:30 – 9:30 PM EASTERN

In this live webinar, you will be inspired as you learn about new tools and strategies you can use to give your son or daughter increased independence in activities including, but not limited to, reading/listening to books, arts and crafts, taking photos, mealtime preparations, games, etc. Strategies for supporting quick and easy set-up will also be outlined so you can have other family members or caregivers set things up for your son or daughter. A few of the activities presented involve the use of Tobii Dynavox’s Communicator 5 through touch screen or eye gaze technology. Others include web-based games, which can be accessed through a single switch or eye gaze technology. Although you will walk away from this webinar with many ideas, you will be sure to find one that will be the easiest or most fun to introduce to your son or daughter. A resource list with links to toys and tools will be included in the course.

This live webinar will have a format of a 45-minute presentation followed by questions from participants for the rest of the hour or so.

ACCESS TO THE WEBINAR WILL BE MADE AVAILABLE 15 MINUTES BEFORE START TIME AND CAN BE FOUND IN YOUR CURRENT COURSES FOLDER OF YOUR RETT U ACCOUNT.

About our instructor:

Judy Lariviere, M.Ed., OTR/L has worked in the field of Assistive Technology, including Augmentative and Alternative Communication (AAC), for the past 27 years. She is the Communication Specialist at Katie’s Clinic for Rett Syndrome and Related Disorders at UCSF Benioff Children’s Hospital Oakland. Judy also has a part-time private practice through Assistive Tech 4 ALL, Inc. Over the past 18 years, Judy has worked with many girls and women with Rett Syndrome (RTT); identifying their best means of access to technology for communication and literacy learning, while also implementing tools and strategies to support their educational progress. She has designed various eye gaze page layouts specifically for individuals with RTT and has used these successfully with over 250 girls and women. In addition, Judy has also developed a video player and accessible music player for use with Tobii eye tracking devices.

Judy presents at conferences nationally and internationally and has published articles about access and eye gaze technology for individuals with RTT. Judy is a full-time Professor as an Assistive Technology Specialist in the Disability Resource Center at Skyline College in San Bruno, CA. Judy is passionate about “unlocking” the communication and learning potential in individuals with Rett Syndrome and related disorders. Currently, Judy and Pati King-DeBaun are developing an online interactive curriculum focused on jump starting conversation, language and literacy for students with Rett Syndrome which will be available soon.

#fun #leisure #rettuniversity #rettsyndrome #riseaboverett #girlpower2cure #rettgirl
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1 week ago

Rett University

We just had to share some photos of yesterday’s Rett University training workshop in conjunction with The University of Alabama in Huntsville. Special thanks to all who attended and Tobii Dynavox for supporting this great endeavor. We are equipping north Alabama educators with state-of-art tools and training to support complex-needs students, enhancing their educational experience by bringing innovative literacy and communication instructional strategies to current classroom environments. THIS IS LITERACY AND COMMUNICATION FOR ALL IN ACTION!

Contact us to learn more about our innovative and complete toolset that is customized for nonverbal students with complex needs. More info at rettuniversity.org
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