I am a parent. A parent to someone with Rett Syndrome. A child with Rett Syndrome who indisputably is in great general health, so far dodging many of the major symptoms and challenging her diagnosis every day, but a child with Rett Syndrome nonetheless. She is...
I am a mom to two amazing little girls. My oldest has Rett Syndrome, a severe neurological disorder that mainly affects girls. It affects every part of her body: her ability to walk, speak, or even use her hands. In addition to wife and Rett mom, I am a...
