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Fighting back from helplessness

Learning that you are helpless…then unlearning it again! by Jennie Simmons I am the mother of a 7-year-old daughter with Rett Syndrome. Since she was diagnosed, nearly four years ago, I have tried my best to use my training as a psychologist, researcher and complementary therapist to help manage the difficulties of life with Rett where […]

Rett U scholarship makes impact in Mexico

Our number one priority is being able to make a positive impact on the lives of those suffering from Rett Syndrome. Recently we received this letter from a therapist in Mexico who was the recipient of a Rett U scholarship. We want to share her words with you. [original letter in Spanish follows below]     […]

WHAT IS RETT SYNDROME?

A NEUROLOGICAL/MOVEMENT DISORDER WHICH PREDOMINANTLY AFFECTS GIRLS (APPROXIMATELY 1 IN 10,000)

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